Happy 1st Blogiversary to Me!

 My entry into the Blogisphere occurred 1 year ago today with the labor and delivery of my first blog! So Happy Blogiversary to me!

I want to thank each of you for taking the time to read each blog and sometimes leaving comments. It has been quite an adventure, and I'm glad you all traveled this journey with me. 

Some blogs were written with tears; others took on a life of their own. Some stories made the long trip back through memory lane; others were full of more information than you ever wanted to know about melanoma and tanning. I have shared stories that, until that blog, had been held close to my heart and never shared before. You have also seen my sometimes quirky sense of humor and my usual snarky sarcasm. I've earned search key words that I can't print here because they are pornographic in nature; I have gathered readers from all over the world, especially South Africa.

There are many more blogs waiting to be told, but for now, every ounce of my time and energy is being squeezed into getting my newest Facebook page, Pull the Plug on Tanning Beds, up and running. I realized a void in the Facebook groups. There are groups for skin cancer or melanoma in general, for support, for sun safety, for remembrance, for advocacy, for combinations of all aspects of melanoma ... but nothing specifically and solely addressing the dangers of tanning beds. 

So Pull the Plug was born, and January, the beginning of the teen indoor tanning season, was designated as Tanning Bed Dangers Awareness Month. My goal was to blanket the social media with information about the risks of using these death beds ... and I think, thanks to its more than 1,300 members and growing, we have accomplished that goal and more. 

Along with spreading awareness, we have been contacting colleges and universities about tanning beds on and off their campuses and about making risky behavior more convenient to their students by including tanning salons in their cash card programs. We have battled with tanning salons and their false advertising on Facebook. We are contacting fitness centers about including free cancer with their membership by having tanning beds. And much, much more.

All this will continue beyond January ... actually, until either I or tanning beds are obsolete! So if you haven't joined us yet on Pull the Plug and you care about the damage being done by these cancer machines, please consider this your invite.

But back to the celebration for now! One year of blogs behind me and a new blank page just waiting to be filled. I hope you enjoyed reading my blogs and took something good away ... more information, a different point of view, a smile, an understanding ... and I hope you will continue to follow me. Thank you again!

 

 Melanoma Mama (Jaime's mom, Donna)



http://www.facebook.com/donna.h.regen
http://www.facebook.com/jaime.regen.rea (Remember Jaime)
https://www.etsy.com/shop/sweetpea321 (Jjem Creations)
http://stores.ebay.com/Sweetpea321 (Jjem Creations)

Tears in the Turkey

The holidays are upon us ... as we are constantly reminded through TV, radio, magazines, newspapers, store decorations, and the internet ... and they can be a very depressing time for many.

This year it seems that we jumped straight from Halloween into Christmas, with Thanksgiving being ignored ... or straight from "give me candy" to "give me presents" and bypassing the "giving thanks" part! Sadly it makes sense because Christmas and Halloween are retail driven, whereas with Thanksgiving, not so much unless you are a turkey farmer!

But Thanksgiving will happen. It is a warm and fuzzy (and yummy) family-focused holiday that is wonderful for those with families who can gather together for the celebration. However, we should not forget that this is not easy or possible for many, and the feelings that go along with that can be extremely complex.

Some come from a different culture in which Thanksgiving is not a part of their holidays, and they may feel left out. Some people have no families so a holiday with so much emphasis on family could certainly leave them feeling depressed and isolated. Some families are scattered far apart, and because of finances, health, time, or any other number of reasons cannot be together and they may feel sad, lonely, and even guilt-ridden. I feel their pain; they are not alone!

Some families have members who are on the other side of the world serving our country and perhaps in harm's way, so the holiday might make them miss those loved ones even more. Some will have to work on Thanksgiving and unable to share the holiday with family, and they may question if their sacrifice is appreciated. Others might have no job and no money to prepare a fest, and they may be concerned over how they will feed their family over the coming weeks and months. I feel their pain; they are not alone!

Some will be celebrating their first Thanksgiving, and I actually missed Thanksgiving with my family one year when I was in the hospital delivering my second son Tim. And sadly, some will be celebrating their last.

Some might be ill and have no energy to join the family in the celebration; they shouldn't feel guilty, but they probably will. Some families only have the strength to sit at the bedside of a frail and dying family member, with no interest in cooking or even eating a holiday meal because they are physically and emotionally drained. Some families will be grieving the loss of a loved one, and the empty chair at the Thanksgiving table will be too much for them to bear. Their hearts will be shattered all over again. I feel their pain; they are not alone!

So while you are enjoying the warmth and love of your family turkey dinner and contemplating all you have to be thankful for, remember that others may be having a difficult time just getting through the holidays. Open your hearts and let them know that they are not alone. Not everyone's Thanksgiving will look like the pictures on greeting cards!

Happy Thanksgiving!


Melanoma Mama (Jaime's mom, Donna)

http://www.facebook.com/donna.h.regen
http://www.facebook.com/jaime.regen.rea (Remember Jaime)
https://www.etsy.com/shop/sweetpea321 (Jjem Creations)
http://stores.ebay.com/Sweetpea321 (Jjem Creations)

Pink Sisters, I Feel Your Pain

Did you know that October is Breast Cancer Awareness Month? If not, you must live under a rock! We are constantly reminded of this by the sea of pink surrounding us. Some of us call it Pinktober because of the pink obsessiveness; I have even heard breast cancer patients call it "Puketober."

While the other cancer communities (like my melanoma community) drool at the amount of awareness and recognition all this pinkness brings to breast cancer, many in their community believe that the pink campaign is excessive and not delivering the right message. A giant case of be careful what you wish for ...

And I get it. All the pink ribbons have not given the breast cancer patients a cure; they have not given advanced stage breast cancer patients much in the way of hope. Don't get me wrong. Awareness is great, but I think there is a saturation point ... and in my opinion, it has been breached!

As I discussed in my blog "Pinktober," businesses are profiting from Pinktober more than breast cancer patients ... and there is definitely something wrong with that picture. But it goes further than that. There are campaigns to save the boobies, save the hooters, save the ta-tas ... but what about saving the men and women who have breast cancer.  Sexualizing a cancer will not cure it.

Unfortunately the breast cancer community is struggling with playful pink as their awareness color and brand as well as all the fun and games supposedly created for awareness. Decorating bras might be a fun thing to do, but probably not a great reminder to those who no longer have a need for bras. We all know, or at least we should, that there is nothing fun or playful or party-like about any cancer. It trivializes those fighting for their lives and disrespects those whose lives have been lost ... and it sure doesn't cure cancer!

This video points out how out of control Pinktober has become:


In the melanoma community, we understand too well what the breast cancer community is feeling as far as having their cancer trivialized. We have heard way too many times -- "Melanoma? Oh, that's just skin cancer. Cut it out and you'll be fine." And perhaps you remember back a couple years when the American Academy of Dermatology (AAD) tried to turn melanoma's awareness color of black to orange. Black was too depressing, they thought ... NEWSFLASH, melanoma IS depressing! They wanted something more bright and cheerful and attention-getting (like the sun that caused many of the cases of melanoma???).

For Melanoma Monday, a day reserved not only for spreading awareness but also for honoring melanoma warriors and remembering our fallen, the AAD encouraged dermatologists and their staff to wear orange and throw parties, with orange cupcakes, confetti, and streamers. Can you imagine being given a life-threatening melanoma diagnosis in the midst of such a party or by a doctor blowing orange party favors?


So, I understand what it is like to have a cancer presented as less evil than it really is, especially one that has severely impacted your life and broken your heart. The marketing people who come up with these ideas of fun and playful awareness obviously have never held a loved one with cancer in their arms while they took their last breath. Their approach is thoughtless and insensitive and, sadly, ... it doesn't cure the cancer!!

Many in the breast cancer community and beyond will be grateful to see November push out Pinktober because it has gone too far! The need for breast cancer awareness has passed, and the pink ribbon has now ventured into commercialization. And to make matters even worse, breast cancer patients feel their cancer is being trivialized and sexualized. The pink has gone amuck ... and does all this really help in the search for the cure?


 Melanoma Mama (Jaime's mom, Donna)

http://www.facebook.com/donna.h.regen
http://www.facebook.com/jaime.regen.rea (Remember Jaime)
https://www.etsy.com/shop/sweetpea321 (Jjem Creations)
http://stores.ebay.com/Sweetpea321 (Jjem Creations)

Pinktober: The New October

It's October, and Fall is in the air in many areas of the country (although it is still Summer in my neck of the woods, Texas). Autumn is starting to strut its color palette of the turning leaves: golds, oranges, reds, browns. Mother Nature is showing off her breath-taking display ... but it is being obscured by pinkwashing. Cool, feminine, and flirty pink has become a man-made intrusion into the warm, rich colors of Fall.

This used to be October ...

and now it looks like this ...

and this!!

This explosion of pink has actually taken over the month of October, all in the name of breast cancer awareness. It has gotten so in-your-face obnoxious that October is now called "Pinktober" by many both in and out of the breast cancer community. But more on that later ...

First join me as I ponder over the timing of this pinkness. It is interesting to me that the color pink, a very Spring-ish pastel color, is so prevalent in the Fall. Wonder what the thinking was on that? Isn't it curious that a cancer using pink as its awareness color doesn't have March or April as its special awareness month? Do you think the fact that football is a Fall sport and perhaps needed to

be spiced up with lots of pink accessories was part of the decision-making on that? If the powers-that-be wanted October as their awareness month, why didn't they select a typical Fall color ... like orange? Marketing companies get paid big bucks to figure out these things ... but the logic just isn't there for me. Not that any of this matters; it is just one of those things rattling around in my brain looking for answers. Thanks for indulging me!

Now getting back to Pinktober, it is no secret that I am not a fan. But please don't just call me a hater and dismiss me. I don't hate breasts (I actually have a couple of those myself); I don't hate pink (it was my daughter Jaime's favorite color but not so much mine) ... but I DO hate cancer (and melanoma, the cancer that killed my Jaime, in particular)! I DO support breast cancer awareness and research. I was one of the founding members of the Susan G. Komen chapter in our county about 30 years ago. I have lost too many friends and family members to this disease, and I actually, because of a pre-breast cancer condition diagnosed earlier this year, have my own breast cancer surgeon whom I visit often. [Update 2022: I am now also a Stage 1 breast cancer patient.]

But enough is enough already with the pink!! Pink is everywhere ... from trash cans to PF Chang horse statues ... even drill bits used for fracking. Pink ribbons adorn almost every product on store shelves. You don't have to look hard in the Hunt for the PINK OCTOBER! If you love pink, you are in pink cotton-candy heaven. But for some of us, it just makes us feel like we are drowning in a sea of Pepto-Bismal!

Is this crazy pinkness doing its job to raise breast cancer awareness? Better question: Is there anyone out there who already isn't aware of breast cancer? And an even better question: How many lives are being saved by this awareness campaign? Is it raising funding for research? Possibly, but not near what it should be. Most likely it is raising money for the businesses that advertise the pinkness. Pink has become a commercial honey pot!

Buying your drink in a pink cup may make you feel all warm and fuzzy, but that is probably all it will do. My guess is that businesses are jumping on the pink bandwagon to capture your business and not because of their strong desire to cure breast cancer. Unfortunately, most consumers are not aware that there are no regulations on which products can advertise with the pink ribbon ... even products not remotely connected to cancer or that contain chemicals that research has shown possibly cause breast cancer. Now in defense of cat litter, read my blog From Litterbox to Laboratory!

And what about all the other cancers, many you have probably not even heard of? What about awareness and research funding for those? Shouldn't we be concerned about ALL cancers ... about finding a cure for ALL cancers and not just the pink one?

Today I saw an ad for Swarovski crystals, stating that for this month a donation would be given to a breast cancer foundation based on all pink crystals sold. Before Jaime died, she designed and created awareness bracelets for all cancers using Swarovski crystals. I have continued to make them in her honor so I am aware of the different colors used for different cancers. I have never seen donations made for buying gold crystals for childhood cancer in September or black crystals for melanoma in May, etc. ... just pink in October.

My point? There are more colors than pink, and there are more cancers than breast cancer. Everyone is so fixated on breasts ... but what about colons, lungs, livers, thyroids, brains, skin? Last I checked there is no cure for any of these cancers once they have reached an advanced stage. As a melanoma advocate, I admit to being biased and even a bit (okay, a lot!) jealous of all the attention and funding that breast cancer gets, but recently, to be quite honest, the pinkness has become overwhelming and its results questionable.

And why the focus on breasts instead of on the lives of those who have the

breasts? Decorating bras may be fun, but it must be hurtful to those who no longer have a need for bras. But that is another blog for another day ...




Melanoma Mama (Jaime's mom, Donna)

http://www.facebook.com/donna.h.regen
http://www.facebook.com/jaime.regen.rea (Remember Jaime)
https://www.etsy.com/shop/sweetpea321 (Jjem Creations)
http://stores.ebay.com/Sweetpea321 (Jjem Creations)

Not Music to My Ears

I admit it. I have a lot of anger toward the indoor tanning industry. My daughter Jaime was a tanning bed addict when she was in high school and college ... up until she was diagnosed with melanoma, a potentially fatal type of skin cancer, when she was 20. She fought this damn disease for her entire adult life but died when she was 29. A beautiful young life cut way too short, all because of tanning bed use. So I think my anger is justified.

To fan the flames of my anger, tanning beds are still very popular, particularly among teens and young adults. Vanity wins over sanity every time. Everyone knows how dangerous UV radiation is ... or at least everyone should know ... and yet the indoor tanning business is thriving while leaving behind a trail of young dead bodies.

The American Cancer Society and various skin cancer/melanoma foundations and medical organizations, the FDA, the CDC, the US Surgeon General (and me!) have all come out with warnings about the use of tanning beds ... but our pleas are basically ignored.

Why? Because our culture promotes being tan. Reality TV shows and magazines equate being tan with being sexy, and fitness centers promote the idea that a tan is healthy, when, in fact, neither is true. A tan is just the often deadly result of UV radiation damage.

A friend who understands my obsession with getting the message out about the dangers of tanning beds made me aware of this music video (UV Love) by Clinton Sparks. A sweet little romantic ballad it's NOT, so consider yourself warned if you watch it! From the title, you can probably guess that it is filmed in a tanning salon with young women roasting in tanning beds.

I can't understand the lyrics when I listen to the song, but I still don't understand them when I read them! (lyrics) But the lyrics don't even matter. It is the visual that gives the perception that tanning is a positive and acceptable activity.

Now I know I am out of touch with the current music scene (The Lettermen is still one of my favorite groups), and I admit that I have never heard of this guy. My hope is that this recording artist (term used very loosely) is not very popular because the message he is sending, that frying your skin in a tanning bed is sexy, is just flirting with death.

I'm not going to kid myself or you into thinking that kids listen to my preaching (or their parents') about staying out of tanning beds more than they listen to music videos like this one that are targeted to their age group and reach out and grab them.

Kids don't have to use any time or effort thinking about what this video is projecting ... that being tan makes you sexy and desirable and popular and fun. After all, these videos are made to make money; same goal as the indoor tanning industry, no matter the damage they do.

In contrast, my message tells them that tanning could kill them, but kids are certain that will not happen to them. They're too young to worry about that, right? That's what my Jaime thought too!

We must change the way our culture promotes tan bodies ... from the media to the fitness centers to the world of music. Some may claim this video was created with artistic license, but I claim it is irresponsible and driving kids and young adults to participate in an activity that is similar to playing Russian roulette with their lives. Reminds me of the cigarette ads with the sexy, manly Marlboro man!

When the US Surgeon General recently released a Call to Action against skin cancer, he was reaching out to everyone to do their part. Clint Sparks apparently thinks he is exempt. Some people, like the indoor tanning industry, will do anything for a buck ... even put young lives at risk. Why should freedom of artistic expression be acceptable when it is promoting dangerous activity?

Can you see why I'm so angry???




 Melanoma Mama (Jaime's mom, Donna)

http://www.facebook.com/donna.h.regen
http://www.facebook.com/jaime.regen.rea (Remember Jaime)
https://www.etsy.com/shop/sweetpea321 (Jjem Creations)
http://stores.ebay.com/Sweetpea321 (Jjem Creations)

Labors of Love

Labor Day ... marks the unofficial end of summer (but no excuse to stop using your sunscreen!) and the welcoming of the Fall season. Not only is it celebrated with cookouts and a 3-day holiday but tons of sales, sales, and more sales! According to Wikipedia, Labor Day "is a celebration of the American labor movement and is dedicated to the social and economic achievements of workers."

Okay, so we have a holiday to pay tribute to the American workforce and economic achievement, and don't get me wrong, working for a wage and being financially stable is important ... but does everything have to be about making a buck? What about a long weekend designated to celebrate  "labors of love"?

I define labors of love as meaningful actions that you do with no financial compensation, and we could come up with a long list of those. Giving birth (the true meaning of LABOR), raising a family, being a loving and patient caregiver to an elderly parent or a loved one with illness, adopting a pet, volunteering ... all extremely important although none makes us wealthy.

We have probably all performed many labors of love throughout our lives, but there is still time to do so much more ... and so much more is needed.

There are small labors of love that are simply random acts of kindness that we all should remember to do ... smile at a stranger, say thank you to a store clerk, call or send a card to someone who would be cheered by just knowing you are thinking of them, take a meal to someone who is sick or grieving, hand a cold bottle of water (in summer heat) or a cup of hot chocolate (in winter cold) to your mailman, make a donation to your favorite charity. The possibilities are endless, and they truly make a difference to someone's day!

But I'm really thinking of larger labors of love that take more effort and time and commitment ... plan or participate in a fundraiser, donate blood, volunteer at a nursing home or hospital or school or animal shelter, become a coach for a kid's sports team or a leader for a scout troop, teach a Sunday school class. Get the idea?

I've always been a little (okay, a lot) obsessive about volunteering ... so much so that my efforts were acknowledged with the Volunteer of the Year award in my community of Plano, TX, many years ago. I didn't set out to be so involved in our schools and community; there's just so many wonderful projects that need (wo)manpower that I couldn't resist. Volunteering can be addictive!

When my only daughter Jaime died from melanoma 7 years ago, that following week I did what I swore I would never, ever do. I became a melanoma advocate and the indoor tanning industry's worst nightmare. Watching her struggle with this evil disease, I had thought that once her fight was over, I never wanted to hear the word melanoma again. But over the 9 years of her journey with this cancer, it is what I had come to know and experience, and what I had come to hate ... and something I didn't want other families to have in their lives.

So melanoma advocacy has been my constant labor of love since my last labor of love as Jaime's caregiver ended. I didn't choose it; it chose me. Some think I do this to heal ... but if you have ever lost a child, you know that you can never heal, no matter what actions you take or don't take!

To be honest, I don't even particularly enjoy this labor of love that has attached itself to me, especially as I shed tears watching wonderful people die (too often young adults) and friends and families suffer on what seems like a daily basis. I question why I do what I do when I hear the lies and deception that comes out of the indoor tanning industry and sun worshipers. I scream when I hear the false reasoning of many state legislators regarding the protection of their youth from tanning bed use. I beat my head against the wall when I hear the excuses coming from schools about why the kids can't bring sunscreen to school or wear hats when outside. But this is MY labor of love so I keep doing it, hoping to make a small difference, ... and I will continue to do so until I am no longer able or until melanoma no longer exists.

But you have lots and lots of choices for your own labor of love. Don't worry about "what's in it for me," because what you get out of your labor of love will be so much greater than what you put in ... even if you can't take it to the bank.
 
Just pick something already, something you are passionate about or have a curiosity to learn more about. Maybe even step out of your comfort zone and try something challenging. You can't fail and many can benefit. Don't wait for a designated holiday ... make the effort to participate in a labor of love as often as you can!

 Melanoma Mama (Jaime's mom, Donna)

http://www.facebook.com/donna.h.regen
http://www.facebook.com/jaime.regen.rea (Remember Jaime)
https://www.etsy.com/shop/sweetpea321 (Jjem Creations)
http://stores.ebay.com/Sweetpea321 (Jjem Creations)

Bzzzing for a Cancer Cure

Lately, we have been reading about a lot of bizarre "possible" cures for cancer. Most recently I have written blogs about the miraculous cure possibilities of smelling farts (Pull My Finger...Save a Life) and then came the amazing potential of cat poop (From Litterbox to Laboratory) as THE cure. And now today, part 3 of this suspenseful trilogy just streamed into my newsfeed.

It seems everyone is buzzing about the discovery that the venom from bees, scorpions, and snakes may offer the promise of a future cure (Bee, Scorpion, and Snake Venom May Hold Cancer Cure) using nanotechnology. It's all very ssssslick ssssscience, and here is another article about the role of nanoparticles in curing cancer (Nanoparticles -- The Next Cure for Cancer), but,

could we just please find a cure for cancer already???


(Side note: Speaking of venom, where you aware that the male duck-billed platypus, which carries venom inside ankle spurs, is one of the few venomous mammals? Consider your life enriched with this piece of trivia!)

But back to the bees, scorpions, and snakes (Ugh ... gives me the creeps but it's for the common good!!). Actually, the idea of venom-based cures from fangs and stingers is not new. There is history of their use as far back as 67 BC. And the Brazilian pit viper venom has led to development of ACE inhibitors for high blood pressure. So perhaps this line of research isn't quite as bizarre as it might first appear, but,

could we just please find a cure for cancer already???


When my daughter Jaime was fighting cancer, there was talk about birch tree bark and mushrooms as a cure for her melanoma. NCI wanted to inject her with the herpes virus for their research. Some of her fellow melanoma patients were getting jolts of electricity. It's good that scientists are reaching ... really reaching and thinking outside the box ... to find a possible cure for cancer, but,

could we just please find a cure for cancer already???


Over the years, so many "encouraging" possibilities as cures for cancer have been suggested -- red wine, coffee, pine bark, peanut butter, blueberries, antioxidants (and then not antioxidants), vitamin C (or maybe vitamin C makes cancer worse), and even tanning beds according to the indoor tanning industry (but NOT to be believed). Just do a Google search for cancer cures -- cannabis oil, zebrafish, gold, cow urine, aspirin, frankincense, sloths. What the heck is a sloth anyway??? So it doesn't seem like I am asking too much when I plead,

could we just please find a cure for cancer already???

Now, I admit that I am not a patient person. But billions of dollars have been donated to cancer research over the many years of our "War on Cancer," and sadly, as you read this, way too many cancer patients are clinging to life, hoping and praying for a cure. It is too late for my forever-29-year-old Jaime and our family, but a cancer cure could make a huge difference in the lives of millions of others. So please keep these warriors and their families in mind when you experiment with cat poop parasites and odiferous gases and "nanobees," and maybe, just maybe,

could we just please find a cure for cancer already???


Melanoma Mama (Jaime's mom, Donna)

http://www.facebook.com/donna.h.regen
http://www.facebook.com/jaime.regen.rea (Remember Jaime)
https://www.etsy.com/shop/sweetpea321 (Jjem Creations)
http://stores.ebay.com/Sweetpea321 (Jjem Creations)